But it turned out to be a good job, and Tom was a nice guy, and the travel was interesting. I saw my mother and sister. My friend Sister Nena had just called. I went upstairs to get the scissors out of my sewing basket. I feel great. As we worked our way through trying to get contracts signed and making arrangements with the audio producer, our emails became an affectionate exchange. Most recently, she had a solo exhibition of paintings at ROSEGALLERY called These Precious Days, just like Patchetts piece. She had moved in before the pandemic. PATCHETT: It really is. Once I start writing things down, I feel like Im nailing the story in place. Please Scream Inside Your Heart:New book relives chaotic 2020 news cycle in a good way, She states it quite plainly in the introduction, Essays Dont Die, a short piece that describes the process she used to select the essays for this book, most of which appeared in slightly different form in other publications. Gingerly we picked our way forward. It was a science experiment that could never be replicated. KELLY: (Laughter). Maybe it had something to do with her job. (I say this as someone who is spending my days trying to write about our friendship and what happened here. When Im putting together a novel, I leave all the doors and windows open so the characters can come in and just as easily leave. She told me she had gained back the twenty pounds shed lost after the last chemo but she couldnt have weighed a hundred pounds now. That at home she felt responsible for overseeing every aspect of her treatment, researching cures, double-checking medical ordersshe had caught a few harrowing errors along the way, near missesbut here she knew that Dr.Bendell and Karl always had their eyes on her. She was there and then she was gone and we wouldnt see her again until the next morning. I had liked her coat very much, those pink peonies as big as my hand. Then, we ended up staying in touch very lightly - you know, an email every month or two. No events scheduled for January 16, 2023. Karls cousin was visiting from New Mexico, sleeping in the other guest room. Sooki of the magnificent coat. Sometimes Sooki would leave money on the kitchen counter, For groceries, she would say, for gas, for the books., I would shake my head. Are you sick?. If there were too many people there, you managed to crop them out. I didnt know what I was supposed to do, she told me later. She must miss all those people she so rarely spoke of. Her father was in the hospital and she had driven down from Kentucky to take care of him. Good, I thought. Blind Boys of Alabama with Special Guest TBA. They knocked one another down like dominoes. The producer of the audiobook sent me an article about Sooki from a 1978 issue of New York magazine. Marti and I had hitchhiked through Europe together the summer we were nineteen. This text may not be in its final form and may be updated or revised in the future. How much is the Raphael worth? She traveled the world as the personal assistant to one of Hollywoods biggest stars. For a time, the mother in this novel went to India to work for Mother Teresa. $23.99. Shes Catholic. High-dose psilocybin produced large decreases in clinician- and self-rated measures of depressed mood and anxiety, along with increases in quality of life, life meaning, and optimism, and decreases in death anxiety. They clearly didnt understand she intended to walk, though knowing Sooki, she probably could have carried it. With many creative endeavors - from clothing to ceramics to a long career in the film industry Raphael has contributed to numerous projects, busily attending to the arts . I was told that although not everyone wanted to commit to having the tattoos, it was the most accurate way to align the radiation field that had been so meticulously laid out by a team of physicists working alongside my radiation oncologist. View Sooki Raphael's business profile as TH Assistant at Playtone. She loved Dr.Bendell. How other people live is pretty much all I think about. There were mornings we would go to the store at first light, when no one was around, and tape up boxes and stick on labels together. Tell us. It has to be one of the most extraordinary stories of lockdown how Tom Hanks's assistant Sooki Raphael, undergoing treatment for recurrent pancreatic cancer, came to be living in the basement of the American novelist Ann Patchett and her husband Dr Karl VanDevender. My doctor paired up some words I never thought I would hear together: pancreatic cancer and youre in remission! It seems like an early declaration, but Ill take it! The clothes are small, she said. The three of us were standing, back of the theater in the dark. Ive got to take care of my nun, I told him. I can write an entire novel without showing a page of it to anyone. Who is she? Sooki told me about evacuating for wildfires in the canyon where they lived in Los Angeles, a year and a half earlier, the night before she was scheduled to fly to North Carolina to have surgery. It can be a character, a place, a moral quandary. That night I tried to explain it to Karl. Have a wonderful day today. From her patio, she could watch the planes take off and land. More:Amazon releases its best books of 2021 list: 'An embarrassment of riches'. It turns out that the trial that they were running at the hospital where he worked was exactly the trial she needed. In the press release for the exhibition, ROSEGALLERY said her works used her colorful palette as an expression of a renewal of spirit and life as she healed alongside the scorched landscape of the Malibu and Topanga hills.. There are days of the distant past that remain so vivid to me that I could walk back into them and pick up the conversation mid-sentence, while there are other days (weeks, months, people, places) I couldnt recall to save my life. Ive never experienced anything like it, or you. And if you decide you want to stay, well, you dont have to give that up either., Sooki the Tireless, Sooki the Indefatigable, looked as if she was about to split apart. He describes her as "someone who is all that is good in the world." A neighbor of Patchett's described Sooki as a saint. is the author, most recently, of The Dutch House. feb. 8, 2020: I have wanted to writeevery dayfor forever. Please sign in to save videos. It turned out that Tom and Rita came to town something less than regularly but more than I would have thought. Such a beautiful coat, I said to her. It took me a few weeks to figure this out but soon I could track it, the way her voice got quieter, the way she was less likely to look me in the eye. While we pored over every detail of dinner (Sooki revealed herself to be a great cook), we didnt talk about her family. She painted her granddaughter striding through a field of her own imagination, she painted herself wearing a mask, she painted me walking down our street with such vividness that I realized I had never seen the street before, Patchett wrote. A car was coming to pick them up. There was work to do. Whether you loved it or hated it may depend on your feelings about celebrity culture since the benevolent presence of Hanks and his wife, Rita Wilson, hovers in the background. Theres a grain of truth in, Short term rentals have become a source of income for some property owners in the Santa Monica Mountains and a source of aggravation for others,, Theres a special place just a few miles up the coast, where whales, dolphins, and sea lions swim close to shore, where you can watch. And you will always be in our hearts., And despite not having any formal artistic training, Raphael has done very well. Thats like the building blocks of my, of my life, Farley told SurvivorNet. It's clear this was hard to write about when you turned to actually try to capture Sooki in an essay. I worried, and thought it was not my place to ask. Even in this first picture, a self portrait of her while undergoing chemo during Covid she still painted. Twenty-two sessions down and six to go. People are not characters, no matter how often we tell them they are; conversations are not dialogue; and the actions of our days dont add up to a plot. But the clinical trial she needed was here in Nashville at the hospital where my husband worked. Plenty of nuns were married before., You never know. Then she looked at me, her face suddenly brightened by a plot twist. So what are the deadlines, days needed, etc? Almost from the moment we finished that first practice, she identified it as part of her recovery, the thing she needed to stay alive. Everyone was wide awake, waiting up to see if the world was going to end. In the basement apartment jokingly called the VanDevender Home for Wayward Girls Sooki does what shes wanted to do all her life: paint. I said, I have access to every article of clothing I own and I couldnt pull myself together to look as good as you do going to chemo.. I kept up with a great number of people, and I didnt know to what extent Id told Sookis story to Karl before, and if I had told him, I didnt know whether hed been listening, but now I had his full attention. I was happy, even thrilled, to stop traveling. They would flow on in papery layers, in a creation act. Sookis impending departure touched a memory I made a point of not revisiting: My sister and I flew from Tennessee to Los Angeles for one week every summer to see our father, and on the morning of the day we were going back to Tennessee I would start to cry. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Five-time GRAMMY Awardwinners and living legends, the Blind Boys of Alabama both defined and innovated traditional jubilee gospel, turning their live shows into roof-raising musical Multi award-winning Canadian singer-songwriter and pianist Laila Biali masterfully mixes jazz and pop, bringing virtuosity and unpredictability to songs that are concise and catchy (Washington Smothers Theatre, Pepperdine University 24255 Pacific Coast Highway, Malibu, CA. Sooki Raphael . Hows the painting going? There was my grandmother, my father. He was watching the weather. But now shes memorialized in author Ann Patchetts latest book. Im supposed to be flying.. I came and watched from the open door. It had been more than two years since I met Sooki in a theater in Washington. PET scans) were showing no sign of disease. You always feel this way on Friday., Thats what Im here for, I said. I crawled around her as carefully as I could and collapsed in the hallway. We had never spoken on the phone. The cell-phone case also served as her wallet, containing her credit cards, cash, IDs, insurance cardseverything important. You should come back to the music, she said sympathetically. Tom and Rita were in Australia, where he was about to start shooting a movie about Elvis Presley. I wonder whether it isnt easier here because you dont have to comfort us, you dont have to make us feel better about the fact that youre sick. Id love to do your audio book! Books are fun! She wrote her thesis on bats and rabies. Now that things were going right I felt the jolt of just exactly how wrong they could have been. Tom Hanks was so completely absent from our conversations that I once asked her if he knew where she was. The mistakes I had made were so clear once I had finished. A year and a half had passed since I had picked up his book in my office, and this was where it had taken me: Tom Hanks was willing to read The Dutch House. Not everyone is like this. They had recovered. I would love to stay with you for my first night or two in Nashvilleit would be wonderful to spend some time with you. Asked to endorse Hankss short story collection,Uncommon Type, and then to interview him on stage during his tour, Patchett first meets Sooki in the wings of a Washington theater. I chart your emotional life.. A couple of authors who were scheduled to have events at the bookstore had pulled out. The plan was that she would go home to Los Angeles during her weeks off, and once UCLA started the trial, she could go home permanently. Moving Forward after Losing a Loved One to Cancer. Miraculously, after a spate of vigorous exercise there would be enough white cells to slip her in just under the wire. I thought he was angry and at the same time I knew my judgment to be flawed. PATCHETT: Well, thank you. I could already see her tumbling down the street. Ann Patchett one night happened to read a short story by the actor Tom Hanks, surprised by its literary quality. It meant she didnt have to sit out chemo for a week. KELLY: Well, it's really, really true, so it was a pleasure to get to say it to you instead of just pining to my book club about how I wish you had another book coming out. Sparky had crawled onto my chest and gone to sleep. I did a Pilates DVD we never got around to. I was introduced to Tom Hankss editor, Tom Hankss agent, his publicist, his assistant, Tom Hanks himself. The phone hadnt been run over, nothing in the wallet was missing. Should I have woken them up and made them come down to the basement? Sooki was diagnosed with pancreatic cancer, and Patchett's husband Karl is a doctor with some serious hookups, so Patchett arranged for Sooki to come to his I would be in and out, other people would spend the night, which would be fine, plenty of room for everyone. This is the way novelists think: beginning, middle, and end. I lost her for a while, and then she was back again. I would bring her stacks of art books from the closed bookstore and she all but ate them. Vivaldi, Vivaldi, Vivaldithats how it starts. She looked at me. Thats been everything to me, and my life. I hoped he would ask me to join them. Then one day she told me she was starting to shed. Two words I kept trying to bring up as I convulsed on the bathroom floor. Now every engagement I had scheduled in 2020 was canceled. By the time the playlist had reached Tristan and Isolde, my skull was a horses skull, dry and white and empty. The wind was coming down the street like a train. Of course I want to go. we asked. Later in the summer there was radiation, just to be safe. After a while she drifted up to the kitchen, taking a stab at the half of banana I had abandoned. a link to a 20,000-word story in Harpers, New book relives chaotic 2020 news cycle in a good way, A Black descendent of Thomas Jefferson brings her ancestors out of the shadows, Amazon releases its best books of 2021 list: 'An embarrassment of riches', Your California Privacy Rights/Privacy Policy. Sooki hadnt answered the question, but that was the day I felt as though we started talking. It was normal in October, three months postchemo and radiationgreat newsbut then started rising. If I can borrow your car, Ill drive back to the airport., I shook my head. Everyone could bring his or her own sandwich and stay safely apart. As the number spiked this week at 1700 U/L, I ran out of excuses, and my PET scan on Wednesday showed a return of the cancer to my liver. I would tell you we were idiots, but thats true only in retrospect. PGVs (pathogenic germline variants) are changes in reproductive cells (sperm or egg) that become part of the DNA in the cells of the offspring. A weekly email taking aim at the relentless absurdity of the 24-hour news cycle. RELATED:Tom Hanks and Rita Wilsons Friend and Assistant Dies from Pancreatic Cancer; See Their Heartfelt Tribute to the Artist, A post shared by Rita Wilson (@ritawilson), Throughout her illness she painted, she saw beauty, she created and she never wavered, Wilson said. I live fourteen minutes from the airport and five minutes from the hospital. I met the hosts of the event and a few people who worked for them. Wonderful Sooki! We took turns cooking or cooked together. Would you feel better about it if I did it with you?, She looked at me. What if you come to Nashville to take part in a clinical trial for recurrent pancreatic cancer only to be killed by a tornado? Sparky Walks the Neighborhood with Ann, Nashville 2020. Im sure these words cant adequately convey what was such a radiant message, but it stayed with me so strongly as I woke up during the night, and thats the best I can describe it. How could I not have known? And we had the most amazing time. Im self-conscious about being in the way, especially if Im not at my best through chemo. SANTA MONICA, CA.-. Sooki, I found out, was sixty-four. And I had never done anything like that before. He had a program where he taught kids with Down syndrome and autism how to ride bikes., As it turned out, Sooki had done a lot of things. She wanted to know about the book I was going to write next, the book I had just barely started thinking of. When does the story start and when does it end? I have to know where Im going, otherwise I spend my days walking in circles. And anyway, UCLA had suspended its plans to start the clinical trial for recurrent pancreatic cancer. I hear you, and I know that if I were in your shoes and you were asking me to stay with you it would seem impossible. I dont have any questions, I whispered in the darkness. Our newsletter vital information, hope, and healing, delivered weekly. It was my intention to vomit, but the idea of getting past Sooki was overwhelming. My death. The title piece in the autobiographical essay collection These Precious Days by Ann Patchett is about her unexpected friendship with Tom Hanks's personal assistant, Sooki Raphael, who ended up living with Patchett and her husband in Nashville while enrolled in a medical trial for pancreatic cancer. He told SurvivorNet that after losing his wife, Alice, to a two-year battle with ovarian cancer, hell never really get over losing her, but he does hope to move forward. My breath was roaring now, in and out, my lungs enormous bellows that would not tolerate my death. Would he think to tell me if something had happened? I shook my head. She has to have children., It could happen. It made her crazy not to be there to help. It becomes the woods. The bottom floor of the house is an apartment, separate entrance, no kitchen. At what point does our understanding of the action shift? My whole life Ive wanted this time. If she missed a session, would her hair fall out anyway? I knew people in college and graduate school who took mushrooms, and then about thirty years passed before I heard anything about them again. There had been a meeting of some sort. Would you just paint us a picture of her? By the time individuals walk into the clinic with symptoms like jaundice, weight loss, back pain or diabetes, its often very late in the stage of the disease., RELATED: Increased Thirst and Dark Urine: Researchers Reveal Two New Signs of Pancreatic Cancer As Cases Increase Over Last 18 Years, Detecting Pancreatic Cancer Early Is Crucial. The paintings came from a landscape of dreams, pattern on pattern, impossible colors leaning into one another. Tom Hanks and Rita Wilson lost their friend Sooki Raphael to pancreatic cancer earlier this year. Kate DiCamillo is coming later on Wednesday. More news about planes: friends of mine in Nashville who knew what was going on with Sooki, and who have a house in California and a jet that takes them there, the nicest possible friends, offered her a ride home. She taught ceramics classes. I need to go home, she said, looking at the pictures of herself she had asked me to take with her cell phone. And we were living exactly in the moment. I had told her the make of my car, and she waved when I pulled up in front of the airport. You must have Mary Poppinss suitcase.. The truth was that we had no idea how long we were going to be together. I was going to tell Karl what was happening but he was looking at his own phone. Whats fascinating fails to translate. You will love her. And the moral of the story is that really is what I have been doing my whole life ever since. Sooki got her pilots license before she learned to drive, Karl told me. Later, she asked him if hed be willing to record the audiobook of her latest novel, The Dutch House. When he agreed, she began a protracted email exchange with Raphael to work out the details. When the event was over and more pictures had been taken and everyone had said how much theyd enjoyed absolutely everything, Tom Hanks and his assistant and I found ourselves alone again, standing at the end of a long cement hallway by a stage door, saying good night and goodbye. Probably it was some combination of the two. assistant: Tom Hanks - as Sookie Raphael: Cloud Atlas: 2012: assistant: Mr. Hanks - as Susan 'Sooki' Raphael: Game Change: 2012: TV Movie assistant: Mr. Hanks: Larry Crowne: 2011: assistant: Mr. Hanks: Big Love: 2006-2011: TV Series assistant - 48 episodes: The Pacific: 2010: TV Mini-Series assistant - 7 episodes: Where the Wild Things Are: 2009: assistant: Tom Hanks: Angels & Demons: 2009: assistant: Mr. Hanks: City of Ember: 2008: assistant: Mr. Hanks You two go and Ill have dinner ready by the time you get back. It was the practical solution, and so they left. Primarily and in her soul she was an artist.. Most days I went to work at Parnassus for several hours, filling boxes. Her kids were in school by then. For what? he asked. She had been in the house for only a few minutes; there hadnt been enough time to lose anything. She had felt their love and heard their voices while I was hacking up snakes in some pitch-black cauldron of lava at the center of the earth. I wrote and she painted and then we made dinner. We were ready. But also undeniable are Patchetts generosity of spirit, compassion and gift for friendship. She had once shown me a picture of herself standing in the surf wearing a bikini, a sarong tied around her narrow hips. Its just. Sooki arrived in Nashville on Sunday, February 23, just after Kate left. Dont worry about it, Tavia said. I felt their love for me. I must have dropped it. Twenty-five people had been killed in the last round of tornadoes in Nashville, two months before. Okay, he said. She painted and slept and did her work; she had her Zoom meetings and her Zoom gatherings with friends. She shook her head, scrolling. I floated upstairs in a world that would not stop changing. PATCHETT: Every single thing was from scratch. They took ten vials of blood on one visit, twenty-eight vials the next. My cancer markerCA 19-9is nonspecific to pancreatic cancer (it can indicate other inflammation in the body), but its an indicator and is supposed to be at 35 U/L or less. I miss our emails. I understand the impulse but I also think weve transcended it. . And then I found out that she had had pancreatic cancer, that she had had a Whipple, that she had gone through chemo and radiation, that she had been pronounced cancer free, that her cancer came back. Curiosity is the rock upon which fiction is built.". But she could. We went home and baked a spectacular cake that was especially well suited to travel. Curiosity is the rock upon which fiction is built.. We were sitting at the bar at California Pizza Kitchen at four oclock in the afternoon. I knew I would write about Sooki eventually, I had told her so, but I had no idea what Id say. 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